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West Ashley Library
9 a.m. – 7 p.m.
Phone: (843) 766-6635
Main Library
9 a.m. - 8 p.m.
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Folly Beach Library
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Phone: (843) 588-2001
John L. Dart Library
9 a.m. – 7 p.m.
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St. Paul's/Hollywood Library
9 a.m. - 8 p.m.
Phone: (843) 889-3300
Mt. Pleasant Library
9 a.m. – 8 p.m.
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Dorchester Road Library
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John's Island Library
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Wando Mount Pleasant Library
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A mixed-methods feasibility study of a goal-focused manualised intervention to support people with dementia to stay living independently at home with support from family carers: NIDUS (New Interventions for Independence in Dementia Study) Family.
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- Author(s): Rapaport, Penny1; Burton, Alexandra2; Palomo, Marina3; Griffiths, Jessica1; Kelleher, Daniel4; Leverton, Monica1; Vickerstaff, Victoria5; Barber, Julie6,7; Bird, Megan1; Budgett, Jessica1; Birch, Jodie1; Rockwood, Kenneth8; Downs, Murna4; Lord, Kathryn4; Kales, Helen C.9; Livingston, Gill1,3; Riley, Peter10; Cooper, Claudia1,3
- Source:
Aging & Mental Health. Aug2021, Vol. 25 Issue 8, p1463-1474. 12p. 1 Diagram, 6 Charts.- Subject Terms:
*DEMENTIA; *TREATMENT of dementia; *SERVICES for caregivers; *CAREGIVER attitudes; *PILOT projects; *RESEARCH; *WELL-being; *FRUSTRATION; *ATTITUDE (Psychology); *RESEARCH methodology; *FAMILY medicine; *MEDICAL personnel; *MEDICAL cooperation; *INTERVIEWING; *COOKING; *PATIENTS' attitudes; *PRE-tests & post-tests; *INDEPENDENT living; *DESCRIPTIVE statistics; *PATIENT compliance; *AGGRESSION (Psychology); *GOAL (Psychology) - Source:
- Additional Information
- Subject Terms:
- Abstract: To examine the feasibility and acceptability of NIDUS-Family, a 6–8 session manualised, individually tailored, modular intervention supporting independence at home for people with dementia; and explore participants' and facilitators' experiences of the intervention. In this single group multi-site feasibility study, trained, supervised non-clinically qualified graduates (facilitators) delivered NIDUS-Family to family carer and people living with dementia dyads. We recruited participants from GP practices and memory services in London and Bradford. We completed quantitative outcomes pre- and post-intervention; and conducted qualitative interviews with participants and facilitators. Our pre-specified main outcomes were proportion of potential participants approached who agreed to participate, intervention adherence and acceptability to family carers, and facilitator fidelity to the manual. We recruited 16 dyads (57% of those approached); 12 (75%) completed the intervention. Of 12 participants rating intervention acceptability, 9 (75%) agreed or strongly agreed that it had helped; 2 (18%) neither agreed nor disagreed and 1 (8%) disagreed. Mean facilitator fidelity was high (81.5%). Dyads set on average 3.9 goals; these most commonly related to getting out and about and increasing activity/hobby participation (n = 10); carer wellbeing (n = 6), managing physical complaints (n = 6); meal preparation/cooking (n = 5); and reducing irritability, frustration or aggression (n = 5). Almost all secondary outcomes changed in a direction indicating improvement. In our qualitative analysis we identified three overarching themes; relationships facilitate change, goal-focused versus manualised approach and balancing the needs of carers and people with dementia. NIDUS-Family was feasible and acceptable to participants. Following refinements, testing in a pragmatic trial is underway. [ABSTRACT FROM AUTHOR]
- Abstract: Copyright of Aging & Mental Health is the property of Routledge and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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