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9 a.m. - 8 p.m.
Phone: (843) 805-6930
West Ashley Library
9 a.m. – 7 p.m.
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Folly Beach Library
Closed for renovations
Phone: (843) 588-2001
John L. Dart Library
9 a.m. – 7 p.m.
Phone: (843) 722-7550
St. Paul's/Hollywood Library
9 a.m. - 8 p.m.
Phone: (843) 889-3300
Mt. Pleasant Library
9 a.m. – 8 p.m.
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Dorchester Road Library
9 a.m. - 8 p.m.
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Edgar Allan Poe/Sullivan's Island Library
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John's Island Library
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Wando Mount Pleasant Library
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9 a.m. - 8 p.m.
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9 a.m. - 6 p.m.
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What Matters to Patients and Their Families During and After Critical Illness: A Qualitative Study.
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- Author(s): Auriemma, Catherine L.; Harhay, Michael O.; Haines, Kimberley J.; Barg, Frances K.; Halpern, Scott D.; Lyon, Sarah M.
- Source:
American Journal of Critical Care. Jan2021, Vol. 30 Issue 1, p11-20. 10p. 1 Diagram, 3 Charts. - Source:
- Additional Information
- Subject Terms: ACADEMIC medical centers; ATTITUDE (Psychology); CATASTROPHIC illness; COGNITION; CRITICALLY ill; DEATH; DECISION making; FAMILY medicine; LENGTH of stay in hospitals; INTENSIVE care units; INTERVIEWING; LIFE skills; RESEARCH methodology; MEDICAL quality control; MEDICAL personnel; PATIENT-professional relations; PATIENTS; QUALITY of life; THERAPEUTICS; EVIDENCE-based medicine; QUALITATIVE research; SOCIOECONOMIC factors; DISCHARGE planning; TREATMENT effectiveness; PATIENT-centered care; PATIENTS' families; DATA analysis software; PATIENTS' attitudes; FAMILY attitudes; DESCRIPTIVE statistics
- Abstract: Background: Despite increased emphasis on providing higher-quality patient- and family-centered care in the intensive care unit (ICU), there are no widely accepted definitions of such care in the ICU. Objectives: To determine (1) aspects of care that patients and families valued during their ICU encounter, (2) outcomes that patients and families prioritized after hospital discharge, and (3) outcomes perceived as equivalent to or worse than death. Methods: Semistructured interviews (n = 49) of former patients of an urban, academic medical ICU and their family members. Two investigators reviewed all transcripts line by line to identify key concepts. Codes were created and defined in a codebook with decision rules for their application and were analyzed using qualitative content analysis. Results: Salient themes were identified and grouped into 2 major categories: (1) processes of care within the ICU— communication, patient comfort, and a sense that the medical team was "doing everything" (ie, providing exhaustive medical care) and (2) patient and surrogate outcomes after the ICU—survival, quality of life, physical function, and cognitive function. Several outcomes were deemed worse than death: severe cognitive/physical disability, dependence on medical machinery/equipment, and severe/constant pain. Conclusion: Although survival was important, most participants qualified this preference. Simple measures of mortality rates may not represent patient- or family-centered outcomes in evaluations of ICU-based interventions, and new measures that incorporate functional outcomes and patients' and family members' views of life quality are necessary to promote patient-centered, evidence-based care. [ABSTRACT FROM AUTHOR]
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