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Primary ciliary dyskinesia and psychological well-being in adolescence.
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- Author(s): Valero-Moreno S;Valero-Moreno S; Castillo-Corullón S; Castillo-Corullón S; Montoya-Castilla I; Montoya-Castilla I; Pérez-Marín M; Pérez-Marín M
- Source:
PloS one [PLoS One] 2020 Jan 23; Vol. 15 (1), pp. e0227888. Date of Electronic Publication: 2020 Jan 23 (Print Publication: 2020).- Publication Type:
Journal Article; Research Support, Non-U.S. Gov't- Language:
English - Source:
- Additional Information
- Source: Publisher: Public Library of Science Country of Publication: United States NLM ID: 101285081 Publication Model: eCollection Cited Medium: Internet ISSN: 1932-6203 (Electronic) Linking ISSN: 19326203 NLM ISO Abbreviation: PLoS One Subsets: MEDLINE
- Publication Information: Original Publication: San Francisco, CA : Public Library of Science
- Subject Terms: Psychological Distress*; Anxiety/*psychology ; Ciliary Motility Disorders/*psychology ; Depression/*psychology; Adolescent ; Anxiety/epidemiology ; Child ; Ciliary Motility Disorders/epidemiology ; Depression/epidemiology ; Female ; Humans ; Male ; Pediatrics ; Self Concept ; Surveys and Questionnaires
- Abstract: Primary ciliary dyskinesia (PCD) is a rare autosomal recessive disease with low prevalence in pediatrics. Health studies have not sufficiently analyzed the role of psychological variables in rare diseases such as PCD. This paper studies the psychological characteristics of a group of pediatric patients diagnosed with PCD compared to their healthy peers. The sample consisted of 48 preadolescents-adolescents, aged 9-18 years (M = 12.96; SD = 2.71), with similar distribution by sex, and 25% of the patients having dyskinesia. Clinical anxiety-depression, self-esteem and psychological well-being were evaluated using questionnaires: the Adolescent Psychological Well-being Scale (BIEPS-J), the Hospital Anxiety and Depression Scale (HADS) and the Rosenberg Self-Esteem Scale (RSE). Data were analysed using descriptive, mean comparison (t-test) and diffuse comparative qualitative analysis (QCA). The results show no differences were found between healthy and PCD patients in the variables analyzed, except for social ties showing the latter greater well-being in this aspect. In QCA models, the variables that best explained the high or low levels of well-being were depression and self-esteem, and primary ciliary dyskinesia was not a necessary condition for presenting low levels of well-being. In conclusion, our results highlight the need to explore psychological aspects in pediatric patients with rare diseases.
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- Publication Date: 20240105
- Accession Number: PMC6977723
- Accession Number: 10.1371/journal.pone.0227888
- Accession Number: 31971980
- Source:
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