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West Ashley Library
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John L. Dart Library
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St. Paul's/Hollywood Library
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Mt. Pleasant Library
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Edgar Allan Poe/Sullivan's Island Library
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John's Island Library
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Edisto Library
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Wando Mount Pleasant Library
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Otranto Road Library
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Health and public sector data sharing requires social licence negotiations.
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- Author(s): Stephenson N;Stephenson N; Smith C; Smith C; Vajdic CM; Vajdic CM
- Source:
Australian and New Zealand journal of public health [Aust N Z J Public Health] 2022 Aug; Vol. 46 (4), pp. 426-428. Date of Electronic Publication: 2022 Jun 09.- Publication Type:
Journal Article- Language:
English - Source:
- Additional Information
- Source: Publisher: Elsevier Country of Publication: United States NLM ID: 9611095 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1753-6405 (Electronic) Linking ISSN: 13260200 NLM ISO Abbreviation: Aust N Z J Public Health Subsets: MEDLINE
- Publication Information: Publication: 2023- : [New York] : Elsevier
Original Publication: Canberra, ACT : Public Health Association of Australia, [1996- - Subject Terms:
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AlphaBeta Advisors. Digital Innovation: Australia's $315B Opportunity. Sydney (AUST): CSIRO Data61; 2018.
Pilkington R, Montgomerie M, Grant J, et al. An Innovative Linked Data Platform to Improve the Wellbeing of Children - The South Australian Early Childhood Data Project. Australia's Welfare Series No. 14. Catalogue No.: UAS 226. Canberra (AUST): Australian Institute of Health and Welfare; 2019.
Productivity Commission. Data Availability and Use: Overview and Recommendations [Internet]. Report No. 82. Canberra (AUST): Government of Australia; 2017 [cited 2021 Aug]. Available from: https://www.pc.gov.au/inquiries/completed/data-access/report/data-access-overview.pdf.
Sadowski J. When data is capital: Datafication, accumulation, and extraction. Big Data Soc. 2019;6(1):e2053951718820549.
O'Shea L. Future Histories: What Ada Lovelace, Tom Paine, and the Paris Commune Can Teach Us About Digital Technology. London (UK): Verso; 2019.
O'Doherty KC, Christofides E, Yen J, et al. If you build it, they will come: Unintended future uses of organised health data collections. BMC Med Ethics 2016;17):e54.
Lovett R, Lee V, Kukutai T, et al. Good Data Practices for Indigenous Data Sovereignty and Governance. In: Daly A, Devitt SK, Mann M, editors. Good Data. Amsterdam (NLD): Institute of Network Cultures; 2019. p. 26-36.
Gehman J, Lefsrud L, Fast S. Social license to operate: Legitimacy by another name? Can Public Adm. 2017;60 (2):293-317.
Rooney D, Leach J, Ashworth, P. Doing the social in social license. Soc Epistemol. 2014;28(3-4):209-18.
Research Australia. Australia Speaks! Public Opinion Polling for Health and Medical Research 2019. Sydney (AUST): Research Australia; 2019.
Braunack-Mayer A, Fabrianesi B, Street J, O'Shaughnessy P, et al. Sharing government health data with the private sector: Community attitudes survey. J Med Internet Res. 2021;23):e24200.
Office of the Australian Information Commissioner. 2020 Australian Community Attitudes to Privacy Survey [Internet]. Canberra (AUST): Government of Australia; 2020 [cited 2021 Aug]. Available from: https://www.oaic.gov.au/engage-with-us/research/australian-community-attitudes-to-privacy-survey-2020-landing-page/2020-australian-community-attitudes-to-privacy-survey.
Street J, Fabrianesi B, Adams C, et al. Sharing administrative health data with private industry: A report on two citizens’ juries. Health Expect. 2021;24:1337-48.
Aitken M, de St Jorre J, Pagliari C, et al. Public responses to the sharing and linkage of health data for research purposes: A systematic review and thematic synthesis of qualitative studies. BMC Med Ethics. 2016;17):e73.
Wynne B. Public engagement as a means of restoring public trust in science - Hitting the notes, but missing the music? Public Health Genomics. 2006;9:211-20.
Gilson L. Trust and the development of health care as a social institution. Socl Sci Med. 2003;56(7):1453-68.
Jasanoff S. Back from the brink: Truth and trust in the public sphere. Issues Sci Technol. 2017;33:25-8.
Hopkins Van Mil. Putting Good into Practice. A Public Dialogue on Making Public Benefit Assessments when Using Health and Care Data [Internet]. London (UK): National Data Guardian; 2021 [cited 2021 Jun]. Available from: https://www.gov.uk/government/publications/putting-good-into-practice-a-public-dialogue-on-making-public-benefit-assessments-when-using-health-and-care-data.
Department of the Prime Minister and Cabinet. Data Availability and Transparency Bill 2020 Exposure Draft Consultation Paper. Canberra (AUST): Government of Australia; 2020.
Office of the National Data Commissioner. National Data Advisory Council [Internet]. Canberra (AUST): Government of Australia; 2021 [cited 2021 Nov]. Available from: https://www.datacommissioner.gov.au/about/advisory-council2021.
Beer D. The Data Problem [Internet]. London (UK): Brave New Europe; 2021 [cited 2021 Sep]. Available from: https://braveneweurope.com/david-beer-the-data-problem.
Prainsack B. The political economy of digital data: introduction to the special issue. Policy Stud. 2020;41(5):439-46.
Franklin S, Roberts C. Born and Made: An Ethnography of Preimplantation Genetic Diagnosis. Princeton (NJ): Princeton University Press; 2006. - Grant Information: DP200100062 Australian Research Council
- Publication Date: Date Created: 20220609 Date Completed: 20220804 Latest Revision: 20220809
- Publication Date: 20240105
- Accession Number: 10.1111/1753-6405.13261
- Accession Number: 35679055
- Source:
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