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9 a.m. - 8 p.m.
Phone: (843) 805-6930
West Ashley Library
9 a.m. – 7 p.m.
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Folly Beach Library
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Phone: (843) 588-2001
John L. Dart Library
9 a.m. – 7 p.m.
Phone: (843) 722-7550
St. Paul's/Hollywood Library
9 a.m. - 8 p.m.
Phone: (843) 889-3300
Mt. Pleasant Library
9 a.m. – 8 p.m.
Phone: (843) 849-6161
Dorchester Road Library
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Challenges and Growth: Lived Experience of Adolescents and Young Adults (AYA) with a Sibling with ASD.
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- Author(s): Iannuzzi, Dorothea; Fell, Lucy; Luberto, Christina; Goshe, Brett M.; Perez, Giselle; Park, Elyse; Crute, Sydney; Kuhlthau, Karen; Traeger, Lara
- Source:
Journal of Autism & Developmental Disorders. Jun2022, Vol. 52 Issue 6, p2430-2437. 8p. 1 Graph. - Source:
- Additional Information
- Subject Terms: AUTISM; SIBLINGS; PARENT attitudes; HUMAN growth; EMPATHY; RESEARCH methodology; INTERVIEWING; EXPERIENCE; LEARNING; QUALITATIVE research; PHENOMENOLOGY; COMPASSION; PSYCHOSOCIAL factors; DESCRIPTIVE statistics; THEMATIC analysis; WORRY; PSYCHOLOGICAL adaptation; PSYCHOLOGICAL stress; PSYCHOLOGICAL resilience; ADULTS; ADOLESCENCE
- Abstract: Adolescent and young adult (AYA) siblings of individuals with autism experience unique challenges that can promote both growth and emotional maladjustment. This study explored sibling and parent reports of siblings' lived experiences and identified learning, stressors, and concerns from those experiences. 20 neurotypical (NT) AYA siblings (ages 13–24), and 21 parents were interviewed. Themes that emerged from the data analysis included: (1) learning, empathy, and compassion (2) relationship between the degree of functional impairment and the nature of the sibling relationship; (3) reluctance to share information about siblings with peers; (4) hypervigilance associated with unpredictable behavior; (5) worries and concerns about the future. These findings contribute to the existing literature on the impact and nature of neurotypical siblings' lived experience. [ABSTRACT FROM AUTHOR]
- Abstract: Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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