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Translational Justice in Human Gene Editing: Bringing End User Engagement and Policy Together.

• Authors : Allyse, Megan A.; Meagher, Karen M.; Michie, Marsha

Subjects: GENOME editing; HEALTH policy; PATIENT participationUNITED States

• Source: American Journal of Bioethics; Jul2023, Vol. 23 Issue 7, p55-58, 4p

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Access to novel drugs and therapeutics for children and youth: Eliciting citizens' values to inform public funding decisions.

• Authors : Gauvreau, Cindy L.; Wight, Lisa; Subasri, Mathushan

Subjects: HEALTH services accessibility; PSYCHOLOGICAL vulnerability; INVESTIGATIONAL drugsCANADA

• Source: Health Expectations. Apr2023, Vol. 26 Issue 2, p715-727. 13p. 2 Diagrams, 2 Charts.

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The Personal Genome Project Canada: findings from whole genome sequences of the inaugural 56 participants

• Authors : Reuter, Miriam S.; Walker, Susan; Thiruvahindrapuram, Bhooma

• Source: CMAJ: Canadian Medical Association Journal. February 5, 2018, Vol. 190 Issue 5, pE126, 11 p.

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Patient-facing digital tools for delivering genetic services: a systematic review.

• Authors : Lee, Whiwon; Shickh, Salma; Assamad, Daniel

• Source: Journal of Medical Genetics; Jan2023, Vol. 60 Issue 1, p1-10, 10p

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How digital tools can advance quality and equity in genomic medicine

• Authors : Bombard, Yvonne; Hayeems, Robin Z.

• Source: Nature Reviews Genetics. September 2020, Vol. 21 Issue 9, p505, 2 p.

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Genome Reporting for Healthy Populations—Pipeline for Genomic Screening from the GENCOV COVID‐19 Study.

• Authors : Frangione, Erika; Chung, Monica; Casalino, Selina

• Source: Current Protocols; Oct2022, Vol. 2 Issue 10, p1-53, 53p

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A step forward, but still inadequate: Australian health professionals' views on the genetics and life insurance moratorium.

• Authors : Tiller, Jane M.; Keogh, Louise A.; McInerney-Leo, Aideen M.

• Source: Journal of Medical Genetics; Aug2022, Vol. 59 Issue 8, p817-826, 10p

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A model for the return and referral of all clinically significant secondary findings of genomic sequencing

• Authors : Kodida, Rita; Reble, Emma; Clausen, Marc

• Source: Journal of Medical Genetics (JMG); 2023, Vol. 60 Issue: 8 p733-739, 7p

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Expanding the Australian Newborn Blood Spot Screening Program using genomic sequencing: do we want it and are we ready?

• Authors : White, Stephanie; Mossfield, Tamara; Fleming, Jane

• Source: European Journal of Human Genetics: EJHG; 20230101, Issue: Preprints p1-9, 9p

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"Game Changer": Health Professionals' Views on the Clinical Utility of Circulating Tumor DNA Testing in Hereditary Cancer Syndrome Management.

• Authors : Shickh, Salma; Oldfield, Leslie E; Clausen, Marc

Subjects: DNA; ATTITUDES of medical personnel; RESEARCH methodologyCANADA

• Source: Oncologist; May2022, Vol. 27 Issue 5, pe393-e401, 9p, 1 Diagram, 2 Charts

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