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Academic Journal

The patient journey of patients with Fabry disease, Gaucher disease and Mucopolysaccharidosis type II: A German-wide telephone survey.

  • Authors : Mengel E; SphinCS GmbH - Clinical Science for LSD, Hochheim, Germany.; Universitätsmedizin Mainz, Zentrum für Kinder- und Jugendmedizin, Villa Metabolica, Mainz, Germany.

Subjects: Delayed Diagnosis/Delayed Diagnosis/Delayed Diagnosis/*prevention & control ; Lysosomal Storage Diseases/Lysosomal Storage Diseases/Lysosomal Storage Diseases/*diagnosis ; Time-to-Treatment/Time-to-Treatment/Time-to-Treatment/*statistics & numerical data

  • Source: PloS one [PLoS One] 2020 Dec 31; Vol. 15 (12), pp. e0244279. Date of Electronic Publication: 2020 Dec 31 (Print Publication: 2020).Publisher: Public Library of Science Country of Publication: United States NLM ID: 101285081 Publication Model: eCollection Cited Medium: Internet

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Academic Journal

A Germany-wide survey study on the patient journey of patients with hereditary angioedema.

  • Authors : Magerl M; Dermatological Allergology, Allergie-Centrum-Charité, Department of Dermatology and Allergy, Charité - Universitätsmedizin Berlin, Luisenstraße 2, 10117, Berlin, Germany.; Gothe H

Subjects: Angioedemas, Hereditary*/Angioedemas, Hereditary*/Angioedemas, Hereditary*/diagnosis; Aged ; Delayed Diagnosis

  • Source: Orphanet journal of rare diseases [Orphanet J Rare Dis] 2020 Aug 26; Vol. 15 (1), pp. 221. Date of Electronic Publication: 2020 Aug 26.Publisher: BioMed Central Country of Publication: England NLM ID: 101266602 Publication Model: Electronic Cited Medium: Internet ISSN: 1750-1172

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Academic Journal

Epidemiology, characteristics and treatment of patients with relapsing remitting multiple sclerosis and incidence of high disease activity: Real world evidence based on German claims data.

  • Authors : Ohlmeier C; Department Health Services Research, IGES Institut GmbH, Berlin, Germany.; Gothe H

Subjects: Multiple Sclerosis, Relapsing-Remitting*/Multiple Sclerosis, Relapsing-Remitting*/Multiple Sclerosis, Relapsing-Remitting*/drug therapy ; Multiple Sclerosis, Relapsing-Remitting*/Multiple Sclerosis, Relapsing-Remitting*/Multiple Sclerosis, Relapsing-Remitting*/epidemiology; Adolescent

  • Source: PloS one [PLoS One] 2020 May 01; Vol. 15 (5), pp. e0231846. Date of Electronic Publication: 2020 May 01 (Print Publication: 2020).Publisher: Public Library of Science Country of Publication: United States NLM ID: 101285081 Publication Model: eCollection Cited Medium: Internet

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Academic Journal

Epidemiology and health care utilization of patients suffering from Huntington's disease in Germany: real world evidence based on German claims data.

  • Authors : Ohlmeier C; IGES Institut GmbH, Friedrichstraße 180, 10117, Berlin, Germany. .; Saum KU

Subjects: Delivery of Health Care/Delivery of Health Care/Delivery of Health Care/*statistics & numerical data ; Huntington Disease/Huntington Disease/Huntington Disease/*epidemiology ; Patient Acceptance of Health Care/Patient Acceptance of Health Care/Patient Acceptance of Health Care/*statistics & numerical data

  • Source: BMC neurology [BMC Neurol] 2019 Dec 10; Vol. 19 (1), pp. 318. Date of Electronic Publication: 2019 Dec 10.Publisher: BioMed Central Country of Publication: England NLM ID: 100968555 Publication Model: Electronic Cited Medium: Internet ISSN: 1471-2377

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Academic Journal

[Good Practice Data Linkage].

  • Authors : March S; Institut für Sozialmedizin und Gesundheitsökonomie (ISMG), Medizinische Fakultät, Otto-von-Guericke-Universität Magdeburg, Magdeburg.; Andrich S

Subjects: Information Storage and Retrieval* ; Research Design*; Germany

  • Source: Gesundheitswesen (Bundesverband der Arzte des Offentlichen Gesundheitsdienstes (Germany)) [Gesundheitswesen] 2019 Aug; Vol. 81 (8-09), pp. 636-650. Date Publisher: Thieme Country of Publication: Germany NLM ID: 9204210 Publication Model: Print-Electronic Cited Medium:

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Academic Journal

Implementation of an algorithm for the identification of breast cancer deaths in German health insurance claims data: a validation study based on a record linkage with administrative mortality data.

  • Authors : Langner I; Clinical Epidemiology, Leibniz Institute for Prevention Research and Epidemiology - BIPS, Bremen, Germany.; Ohlmeier C

Subjects: Algorithms* ; Registries*; Breast Neoplasms/Breast Neoplasms/Breast Neoplasms/*mortality

  • Source: BMJ open [BMJ Open] 2019 Jul 26; Vol. 9 (7), pp. e026834. Date of Electronic Publication: 2019 Jul 26.Publisher: BMJ Publishing Group Ltd Country of Publication: England NLM ID: 101552874 Publication Model: Electronic Cited Medium: Internet ISSN:

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Academic Journal

Individual mortality information in the German Pharmacoepidemiological Research Database (GePaRD): a validation study using a record linkage with a large cancer registry.

  • Authors : Langner I; Clinical Epidemiology, Leibniz Institute for Prevention Research and Epidemiology - BIPS, Bremen, Germany.; Ohlmeier C

Subjects: Mortality*; Databases, Factual/Databases, Factual/Databases, Factual/*statistics & numerical data ; Medical Record Linkage/Medical Record Linkage/Medical Record Linkage/*methods

  • Source: BMJ open [BMJ Open] 2019 Jul 02; Vol. 9 (7), pp. e028223. Date of Electronic Publication: 2019 Jul 02.Publisher: BMJ Publishing Group Ltd Country of Publication: England NLM ID: 101552874 Publication Model: Electronic Cited Medium: Internet ISSN:

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