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Adapting wellbeing research tools for Aboriginal and Torres Strait Islander people with chronic kidney disease.
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- Author(s): Nagel T;Nagel T; Sweet M; Sweet M; Dingwall KM; Dingwall KM; Puszka S; Puszka S; Hughes JT; Hughes JT; Hughes JT; Kavanagh DJ; Kavanagh DJ; Cass A; Cass A; Howard K; Howard K; Majoni SW; Majoni SW; Majoni SW; Majoni SW
- Source:
BMC nephrology [BMC Nephrol] 2020 Apr 15; Vol. 21 (1), pp. 130. Date of Electronic Publication: 2020 Apr 15.- Publication Type:
Journal Article; Research Support, Non-U.S. Gov't- Language:
English - Source:
- Additional Information
- Source: Publisher: BioMed Central Country of Publication: England NLM ID: 100967793 Publication Model: Electronic Cited Medium: Internet ISSN: 1471-2369 (Electronic) Linking ISSN: 14712369 NLM ISO Abbreviation: BMC Nephrol Subsets: MEDLINE
- Publication Information: Original Publication: London : BioMed Central, [2000-
- Subject Terms: Mental Disorders*/diagnosis ; Mental Disorders*/epidemiology ; Mental Health* ; Psychosocial Intervention*/methods ; Psychosocial Intervention*/standards ; Renal Insufficiency, Chronic*/ethnology ; Renal Insufficiency, Chronic*/psychology ; Renal Insufficiency, Chronic*/therapy ; Surveys and Questionnaires*; Behavioral Research/*methods ; Outcome Assessment, Health Care/*methods; Australia/epidemiology ; Comorbidity ; Culturally Competent Care/methods ; Depression/diagnosis ; Depression/epidemiology ; Female ; Humans ; Male ; Middle Aged ; Native Hawaiian or Other Pacific Islander/psychology ; Pilot Projects ; Renal Dialysis/methods ; Renal Dialysis/psychology ; Telemedicine/methods
- Abstract: Background: Chronic kidney disease is an increasingly common health problem for Aboriginal and Torres Strait Islander people. It is associated with multiple concurrent psychosocial stressors frequently resulting in negative impacts on emotional and social wellbeing. There is need for well-designed intervention studies to provide evidence of effective treatment for comorbid depression or other mental illness in this setting. Attention to early phase piloting and development work is recommended when testing complex interventions. This paper documents feasibility testing and adaptation of an existing culturally responsive brief wellbeing intervention, the Stay Strong App, and three commonly used wellbeing outcome measures, in preparation for a clinical trial testing effectiveness of the intervention.
Methods: The Stay Strong App, which has not been used in the setting of Chronic Kidney Disease before, is reviewed and adapted for people with comorbid wellbeing concerns through expert consensus between research team and an Expert Panel. The outcome measures (Kessler 10, Patient Health Questionnaire 9, and EuroQoL) are valid, reliable, and commonly used tools to assess various aspects of wellbeing, which have also not been used in this context before. Feasibility and acceptability are examined and developed through 3 stages: Pilot testing in a purposive sample of five haemodialysis patients and carers; translation of outcome measures through collaboration between the Aboriginal Interpreter Service, Aboriginal and Torres Strait Islander research officers and the research team; and conversion of translated outcome measures to electronic format.
Results: Research team and expert panel consensus led to adaptation of the Stay Strong App for renal patients through selective revision of words and images. Pilot testing identified challenges in delivery of the wellbeing measures leading to word changes and additional prompts, integration of audio translations in 11 local Indigenous languages within an interactive Outcome Measures App, and related research protocol changes.
Conclusion: Modelling the complex intervention prior to full-scale testing provided important information about the design of both the outcome measures and the intervention. These changes are likely to better support success in conduct of the clinical trial and future implementation of the intervention in clinical settings. - References: BMC Psychiatry. 2013 Oct 20;13:271. (PMID: 24139186)
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BMJ. 2008 Sep 29;337:a1655. (PMID: 18824488)
Aust Health Rev. 2020 Apr;44(2):234-240. (PMID: 30995950)
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Ann Med. 2001 Jul;33(5):337-43. (PMID: 11491192)
Clin J Am Soc Nephrol. 2006 May;1(3):349-52. (PMID: 17699229)
Aust N Z J Public Health. 2007 Jun;31(3):259-63. (PMID: 17679245)
Kidney Int. 2013 Jul;84(1):179-91. (PMID: 23486521)
Med J Aust. 2019 Jul;211(1):24-30. (PMID: 31256439)
Semin Dial. 2005 Mar-Apr;18(2):98-102. (PMID: 15771652)
Appl Health Econ Health Policy. 2017 Apr;15(2):127-137. (PMID: 28194657)
BMJ. 2000 Sep 16;321(7262):694-6. (PMID: 10987780)
Aust J Rural Health. 2009 Aug;17(4):174-82. (PMID: 19664081)
J Gen Intern Med. 2001 Sep;16(9):606-13. (PMID: 11556941)
Blood Purif. 2016;41(1-3):218-24. (PMID: 26766028)
Nephrology (Carlton). 2018 Feb;23 Suppl 1:5-13. (PMID: 29436104) - Grant Information: GNT# 1098311 International National Medical Health and Research Councli; NHMRC Fellowship GNT# 1092576 International National Health and Medical Research Council
- Contributed Indexing: Keywords: Chronic kidney disease; E-mental health; Indigenous wellbeing
- Publication Date: Date Created: 20200416 Date Completed: 20210903 Latest Revision: 20240328
- Publication Date: 20240329
- Accession Number: PMC7161120
- Accession Number: 10.1186/s12882-020-01776-y
- Accession Number: 32293331
- Source:
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