Strategies for Accessible Breast Screening for People With Intellectual Disability.

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  • Author(s): Weise J;Weise J; Cvejic R; Cvejic R; Trollor J; Trollor J
  • Source:
    Journal of primary care & community health [J Prim Care Community Health] 2024 Jan-Dec; Vol. 15, pp. 21501319241251938.
  • Publication Type:
    Journal Article; Research Support, Non-U.S. Gov't
  • Language:
    English
  • Additional Information
    • Source:
      Publisher: Sage Publications Country of Publication: United States NLM ID: 101518419 Publication Model: Print Cited Medium: Internet ISSN: 2150-1327 (Electronic) Linking ISSN: 21501319 NLM ISO Abbreviation: J Prim Care Community Health Subsets: MEDLINE
    • Publication Information:
      Original Publication: Thousand Oaks, CA : Sage Publications
    • Subject Terms:
      Intellectual Disability*/diagnosis ; Health Services Accessibility* ; Breast Neoplasms*/diagnosis ; Delphi Technique* ; Early Detection of Cancer*/methods; Humans ; Female ; Decision Making ; Mammography
    • Abstract:
      Introduction: People with intellectual disability are less likely to participate in breast screening than people without intellectual disability. They experience a range of barriers to accessing breast screening, however, there is no consensus on strategies to overcome these barriers. Our objective was to reach consensus on the strategies required for accessible breast screening for people with intellectual disability.
      Methods: Fourteen experts participated in a modified on-line Delphi that used Levesque's model of health care access as the theoretical framework. At the end of each round descriptive and thematic analyses were completed. Data was then triangulated to determine if consensus was reached.
      Results: After 3 rounds, 9 strategies were modified, 24 strategies were added and consensus was reached for 52 strategies across the 5 dimensions of access. Key areas of action related to (i) decision making and consent, (ii) accessible information, (iii) engagement of peer mentors, (iv) service navigators, and (v) equipping key stakeholders.
      Conclusions: The resulting strategies are the first to articulate how to make breast screening accessible and can be used to inform health policy and quality improvement practices.
      Competing Interests: Declaration of Conflicting InterestsThe author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
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    • Contributed Indexing:
      Keywords: breast cancer; cancer screening; health services; intellectual disability; mammography; preventive health care
    • Publication Date:
      Date Created: 20240506 Date Completed: 20240506 Latest Revision: 20240509
    • Publication Date:
      20240509
    • Accession Number:
      PMC11075611
    • Accession Number:
      10.1177/21501319241251938
    • Accession Number:
      38708679