Changing Pediatric Hospice and Palliative Care Through Medicaid Partnerships.

Publisher: American Academy of Pediatrics Country of Publication: United States NLM ID: 0376422 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1098-4275 (Electronic) Linking ISSN: 00314005 NLM ISO Abbreviation: Pediatrics Subsets: MEDLINE

Publication: Elk Grove Village Il : American Academy of Pediatrics
Original Publication: Springfield, Ill., Thomas.

Patient Protection and Affordable Care Act*; Hospice Care/*organization & administration ; Medicaid/*organization & administration ; Palliative Care/*organization & administration; Child ; Delivery of Health Care/legislation & jurisprudence ; Delivery of Health Care/organization & administration ; Georgia ; Hospice Care/legislation & jurisprudence ; Humans ; Illinois ; Louisiana ; Medicaid/legislation & jurisprudence ; Mississippi ; Palliative Care/legislation & jurisprudence ; Stakeholder Participation ; Terminal Care/legislation & jurisprudence ; Terminal Care/organization & administration ; United States

Since its inception in 2010, the Concurrent Care for Children Provision of the Affordable Care Act has enabled seriously ill pediatric patients and their families to access comprehensive, supportive hospice services while simultaneously receiving ongoing treatment-directed therapies. Although this groundbreaking federal legislation has resulted in improvements in care for vulnerable pediatric patients, the implementation of the law has varied from state to state through Medicaid programming. The pediatric professional community is called to consider how Medicaid services can more effectively be delivered by leveraging legislative mandates and collaborative relationships between clinicians, Medicaid administrators, and policy makers. In this article, we examine ways concurrent care has been executed in 3 different states and how key stakeholders in care for children with serious illness advocated to ensure effective implementation of the legislation. The lessons learned in working with state Medicaid programs are applicable to any advocacy issue impacting children and families .
Competing Interests: POTENTIAL CONFLICT OF INTEREST: The authors have no conflicts of interest relative to this article to disclose.
(Copyright © 2021 by the American Academy of Pediatrics.)

Date Created: 20211014 Date Completed: 20211125 Latest Revision: 20211125

20231215

10.1542/peds.2021-049968

34645691